That's awesome that you're doing some research and taking the initiative to tackle a unique topic. Good on you! Here are my responses:
First Name and last initial?
Country you live in?
USA (Irmo, SC)
Type of Nystagmus?
CN - Congenital Nystagmus (Although the full name of my vision problem is PHPV, which stands for Persistant Hyperplastic Primary Vitreous, with secondary retinal detachment and secondary esotropia)
Did you attend public or private school?
For kindergarten and first grade only, private. But mostly public.
How long have you had Nystagmus?
All my life
What is your occupation?
I am a 33-yr-old librarian. I work at a college library.
What type of aids do you use to conduct your every day life?
None that I need to use on a consistent daily basis. Although I have a monocular lens that I keep in my purse to use when I need it. The most common things that I need it for are: seeing a menu board at take-out restaurant and if I'm sitting toward the back at a presentation/seminar I'll often use it.
What challenges do you still face?
1) Limited driving (But who's complaining. At least I can drive. I'm eternally grateful and thankful for that!)
2) Sometimes a bit of a social stigma. ("Mommy, why is that lady's eyes funny?")
But as I've gotten older, that's been much less of a problem.
3) Sports and other physical activities. Balance and my ability to visually track things (like a ball) pretty much stink. But that's OK - no biggy.
BW: I know that there are different degrees of severity with nystagmus. So I guess how bad a person's nystagmus is will affect what he or she can do in daily life. My advice is: Yes, listen to what your eye doctor says, but ultimately only you in your heart will know what you can and can't do. As you get older and closer to adulthood and are able to have more control over your life, do your best to surround yourself with positive people who will support you. That will go a long way in helping you cope.
I hope this information helps you with your paper. Go get 'em!