vicchy601 wrote:I have problems with any oncoming headlights. They all look like giant sunbursts, and I often have taken off my glasses to clean them because the visual I get resembles what I would see if my glasses were smeared....but they are not. But I do not drive much at night because of this problem. I assume this visual is caused by my nystagmus and based on what others have written.
vicchy601 wrote:This is my first ever post on this network, as I am a new member! Bear with me while I open up a little.
I am a (very young) 60 year old woman and only recently discovered I have had nystagmus for most of my life, I guess the congenital type. Well, let me clarify this. I have been asked, at medical appointments, and even eye appointments, if I was aware that my eyes wiggle. At one point, someone in one of these examinations lightly mentioned I had nystagmus, but that was that. I was assured there was nothing to it, that I was probably born with it, and so it just went right over my head. I never was alarmed or interested to check into it further.
It's only been recently that my wonderful optometrist, during an eye exam, informed me in detail about nystagmus. He gave me information that enlightened me after a lifetime of self-esteem issues that turn out to be related to this condition. I have been researching nystagmus on line since. It has cleared up a number of issues I have had throughout my life that I can now attribute to nystagmus.
One of these 'issues' is chronic fatigue. I am and always have been, more tired than normal, compared to those around me. I learned that nystagmus causes the brain and eyes to work harder than the average person in just everyday life because my eyes are constantly moving. Reading, computer work, driving, just everything is impacted. Night driving is so difficult because the oncoming headlights look light sunbursts. When I'd tell my husband this, he couldn't understand what I was talking about. He just sees differently than i do. Well, no wonder.
Though no longer an issue, when I was young and into sports, I was so incredibly non-athletic that I was always the last chosen for a team. I could never hit a baseball or even a tennis ball, though I'd practically kill myself trying! I wasn't obese or oafish, in fact, I was very little and wiry, so I should have been agile enough. My hand-eye coordination was so bad that ordinary sports everyone else could participate in I could not. The mocking took all the fun out of participating, not to mention how it affected my self-esteem! Now I feel vindicated (though I still wish I could have surfed and water-skied) ;o(
Another problem I have is with crowds, whether it be at a busy department store sale, or going to a large soiree, where there's a cacophony of noises and visuals going on. I would be interested to know if others also have this problem. I thought it was an anxiety problem, but maybe it really isn't after all! But I do get anxiety because my eyes probably work harder than ever when there are crowds and a lot of noise mixing.
Thank you for any input you can offer!
I know there is nothing I can do for my nystagmus, but knowing what I know now as it all relates to this condition/syndrome/disease sure gives me an understanding that I never had before.
Also, I'm always, always very tired. I read that nystagmus causes the brain and eyes to work harder than the average person has to 'work' to read or just do normal activities because our eyes are in constant motion. This is another eye-opener (haha) for me. I've been medically tested through the years to find a reason for my lifetime complaint of chronic fatigue, but I guess I now know the reason for this as well.
Users browsing this forum: No registered users and 1 guest