HI, Just a quick thought. My son Is almost four years old, and was born with CN, i have tried explaining to him his eyes are different and why, but it does seem to go over his head. For as long as i can remember he's moods are awful when his tired, we have him under a paediatrition to rule out any other conditions. Half the time he seems absolutely fine and his nystagmus doesnt seem to affect his ability in anything, but i cant help to think his nystagmus affects him more than we know. Other times i convinced he has ADHD or something else, as he really is disruptive to the family life. Im not sure if he is just frustrated due to lack of vision so he is disruptive.
Mainly i was wondering when did anyone realise they had nystagmus and actually understood it, as i really dont know how to help him, i ask him what he see's and when i think he's struggling i ask, im not sure if hes just agreeing with me or actually if he is suffering?
He's been going to pre school for almost two years, they say he's doing fine and he's nystagmus doesnt affect him. The VI teacher comes in twice a year and she seems to think hes absolutely fine, but he's started saying the last couple of months he doesnt like pre school and really kicking a fuss so im worried hes struggling, or just bored. there has been alot more children joined the pre school lately, im wondering is he getting overwhelmed with lots of more children. im concerned as hes starting school in september and he's moods are so irratic, outside people dont often get why hes behaving like he is. I think i'm just being an over protective mum but then i dont want to not help him! im so frustrated and in war with myself!
Very confused and worried for him at the moment