Everyone wants to see better treatments developed for nystagmus. And eventually we'd like to find ways to cure or prevent the condition altogether.
So, one of NN's main goals is to support and encourage research into nystagmus - we wrote that into our constitution when we became a charity in 1989. We do this in different ways, for example by funding some research directly, by finding subjects to take part in research projects and by organising international research events.
You can read more about what we have already done and what we are doing now by following the links below. You can also Join NN and help us make a difference in the future.
- Can Nystagmus Be Cured? - A short summary of current thinking among researchers and medics with an interest in nystagmus.
- Complex Condition - A brief explanation of some of the challenges faced by scientists and doctors working on nystagmus.
- Research And Volunteers - It's not just about money. How the Nystagmus Network - and you - can make a difference.
- Research Priorities - These priorities are based on a consultation exercise undertaken at NN’s 2011 Open Day and Annual General Meeting.
- Milestones - The links below detail some of the projects we've supported in recent years.
NN sets £40,000 research budget for 2014 (December 2013)
The Nystagmus Network will spend at least £40,000 on research in 2014, its biggest commitment to research so far. This includes a £15,000 grant in the spring, four small grants of £1,500 each (one every quarter) and one £10,000 grant in the autumn.
£15k Carrots NightWalk grant to Cardiff University (October 2013)
The University will use the Carrots NightWalk grant from the Nystagmus Network (NN) and Fight for Sight to investigate the phenomenon of oscillopsia in nystagmus. Oscillopsia is the sensation that the world is wobbling in tune with the involuntary eye movements typical of nystagmus.
NN makes third small grant award of £1500 (October 2013)
NN has given a £1500 grant – the third under its new small grant scheme -- to Leicester University. The grant will go towards Leicester’s work on nystagmus and balance.
NN holds 3rd international research workshop (September 2013)
The UK Nystagmus Network’s 3rd international research workshop, which took place in Abingdon in early September, is already encouraging more collaboration between universities and hospitals around the world. One US delegate said: "This is my favourite conference. We get so much from the interaction and new ideas." NN organises a research workshop every four years and invites 30 vision scientists, ophthalmologists and other experts from around the world.
NN earmarks £5K for small grants (August 2013)
NN set aside £5,000 this year to be allocated in sums of no more than £1,500 to nystagmus research projects in the UK. The first two grants have gone to Cardiff and Southampton. The Cardiff University grant funded a computer software project. The resulting programme will aid Cardiff and other researchers carrying out eye movement research on people with nystagmus. The funding for Southampton helps its work on developing a genetic testing kit for nystagmus.
NN awards £15k to University of Plymouth (June 2013)
NN is funding a £15,000 project by the University of Plymouth to investigate the slow to see phenomenon in nystagmus.
Nystagmus makes it to Top 10 research priorities (April 2013)
Thanks in part to input from NN two questions about nystagmus are in the Top 10 research priorities of one of the categories of the Sight Loss and Vision Priority Setting Partnership (PSP). See http://www.sightlosspsp.org.uk/ for more information.
- NN funds Moorfields research (December 2012)
- NN Publishes first scientific book on nystagmus (September 2012)
- Anglia Ruskin University starts nystagmus research (September 2012)
- Leicester Puts Unique Scanner to work (February 2012)
- NN Funds Eye Tracker (April 2010)
- Second International Research Workshop (September 2009)
- NN Publishes Research On Head Posture (June 2008)
- RNIB Looks At Nystagmus And Iris Recognition (May 2008)
- NN Starts Work On Second International Research Workshop (April 2008)
- NN Funds Genetic Research (October 2007)
- Eye Hand Coordination (June 2007)
- US Research Meeting (May 2007)
- Pilot Drug Study Completed (January 2007)
- Nystagmus Gene Discovered (Autumn 2006)
- Seminars In Ophthalmology - Nystagmus (Summer 2006)
- International Research Workshop (September 2005)
- Current UK projects: The links below give you a snapshot of nystagmus research in the UK. They include email addresses for some researchers. You're welcome to contact them if you want to take part in research.
- Published Research - Links to nystagmus research papers.
- Radio feature - Dr Jon Erichsen on nystagmus.