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We use cookies so that our website functions as it should.  These cookies are used on our members area login, the shopping cart and also to track anonymous statistics so that we can improve our website.  None of these cookies are malicious or send any of your personal data to us.  By continuing to use this website you agree to our cookie and privacy policy.

Helpline and email support

You can email or phone our helpline service at  This email address is being protected from spambots. You need JavaScript enabled to view it.  and 029 2045 4242 or 0845 634 2630 (whichever number is cheaper for you).

“I feel so much better after talking to you” – mother of child with nystagmus.

We answer questions on what it’s like to have nystagmus, on treatment and research, on DLA, on education and employment, on driving and discrimination, in fact anything you can think of related to nystagmus, whether congenital (early onset) or acquired (late onset). Or you can just phone for a chat with someone else who has nystagmus.

“Thank you so, so much for getting back to me so quickly - I hugely appreciate your help and you have quelled my initial panic. I hope you mean it when you say you don't mind me getting in touch again” – parent of child with nystagmus.

Our phone helpline is intended mainly for the UK and is open most weekdays between 9 am and 5 pm. However, we have limited resources, so if no-one is here please leave a message with your name and phone number. We accept email enquiries from around the world. We reply in English, but can also accept emails in German, French and Italian.

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