A proposal for a clinical pathway for congenital nystagmus is the centre-piece of a Wales Council of the Blind (WCB) publication. How patients with congenital nystagmus (also known as infantile nystagmus and early onset nystagmus) are treated can vary greatly from one hospital eye department to another.
This variation is due to several factors including differing levels of awareness of the impact of nystagmus among health professionals, varying degrees of experience as well as the use and availability of diagnostic equipment.
The clinical pathway proposal (see http://www.wcb-ccd.org.uk/downloads/roundup21_supplement.pdf) sets out ideas for a standardised approach which would benefit patients, staff and the NHS.
The WCB newsletter supplement dedicated to nystagmus also has articles about nystagmus surgery, the role of optometrists (opticians), personal experiences of nystagmus, acquired nystagmus, the impact of nystagmus on quality of life and current research.
The Nystagmus Network is very grateful to the Wales Council of the Blind (http://www.wcb-ccd.org.uk/index2.php) for publishing a supplement on nystagmus.