Half a dozen hospitals including Addenbrookes, Oxford, Bournemouth, Darlington, Stoke Mandeville, Moorfields and Colchester are already up for raising awareness of nystagmus on November 5th. Staff in these hospitals and eye clinics will join hundreds of people around the UK – and elsewhere – spreading the wobbly word. Addenbrookes has even enrolled the support of Northwick, the bear with nystagmus.
Nystagmus is a lot more common than people realise. We plan to raise the profile of nystagmus so you can mention it without feeling shy or embarrassed. Wear a nystagmus wristband or pin-badge on the day and get people to ask you what nystagmus is. If you want to throw a few famous names into the conversation, mention Richard Osman (BBC TV), apl.de.ap (Black Eyed Peas), flautist Sir James Galway, singers Kenny Rogers and Roy Orbison and actors Frank Langella and Pruitt Taylor Vince. All have nystagmus.
Schools are taking part too, with several children plucking up the courage to tell their classmates about what it’s like to have nystagmus. Radio shows in Eastbourne and Reading have already scheduled features on nystagmus for Wobbly Wednesday Week.
Families in Bromley are holding a Wobbly Wednesday Spooktacular with Halloween disco, bbq and hog roast. Others have events planned in Cornwall and Colchester, Lincoln and Londonderry, Northumberland and Nottingham too – as well as the Isle of Man and Scotland. Beyond Britain, we’re once again linking up with the American Nystagmus Network and supporters in other countries.
To find out more see our Wobbly Wednesday Website at http://www.nystagmusnet.org/cms/index.php/about-us/wobbly-wednesday/365-wobbly-wednesday-2014-november-5th, our dedicated Facebook page at https://www.facebook.com/events/565134980266184/ or contact us at