“I’m glad I’m not alone” was how one seven year old responded after watching our “The way we see it” video, one of two released on Wobbly Wednesday, November 4th. His reaction was shared by thousands of others with nystagmus around the world who for the first time could see and hear others with the eye condition.
One adult said of the video, which features TV quiz show host Richard Osman among others, “Thanks for sharing this great video, helps us understand that people's experience of nystagmus may be individually different.” Another commented: “Wonderful, inspiring perspectives on what it's like living with nyatagmus; fantastic role models who promote positive messages about a rare and commonly misunderstood eye condition!! Great stuff!!”
Within 10 days of the release of the two videos, they had been viewed almost 20,000 times. They inspired at least one teenager to start planning for Wobbly Wednesday 2016 already. The other video – “Professional perspectives” – focuses on current research into nystagmus and the options for helping people now.
The aim of Wobbly Wednesday is to make the general public more aware of nystagmus, a condition which at 1 in 1,000 is more common than most people realise. This year’s activities included quizzes, dress-down days, cake sales, a sports day, sponsored walks, jelly throwing and publicity stands in hospital eye departments and universities.