People with an interest in the eye condition nystagmus are heading to Reading on Saturday 7 May for #NYSTAGMUSNETWORK2016. This will be the first time the Nystagmus Network has held its annual Open Day in the area. The event at the city’s Hilton Hotel brings together families and adults with nystagmus along with health and education professional with an interest in the eye condition that affects around 1 in 1,000 people. Nystagmus means involuntary movements of the eyes and there is currently no cure.
Key to the success of the annual Open Day are the interactive sessions, these enable parents of children newly diagnosed with nystagmus to chat with people born with the condition. Sessions at #NYSTAGMUSNETWORK 2016 include education, work, benefits advice and research updates.
Richard Wilson, Chairman, Nystagmus Network, said: “Our annual Open Day is the biggest event in Europe specific to nystagmus. The emphasis of the day is to learn about nystagmus, and share experiences but most importantly to have fun. It’s wonderful to see the lightbulb go on for so many people as the realise they are not alone. Adults with nystagmus enjoy coming too and are more than happy to share their stories of what it’s like to have nystagmus.”
Places at the Nystagmus Network Open Day can be booked online via https://www.eventbrite.co.uk/e/nystagmus-network-reading-open-day-2016-tickets-20965963762?aff=efbevent Tickets including lunch cost £30 for NN members and £50 for non-members. Children under the age of 8 go for free and between 8-16, £10. There will once again be a crèche for children under the age of 8.
On social media use #NYSTAGMUSNETWORK 2016 to connect with Nystagmus Network Open Day.