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Charities fund £15,000 nystagmus project in Moorfields

Nystagmus Network (NN) News release

For immediate release, 10 December 2012

Charities fund £15,000 nystagmus project in Moorfields

The Nystagmus Network (NN) and Fight for Sight are jointly funding a £15,000 research project by London’s Moorfields Eye Hospital into the eye condition nystagmus. Funds for the project were raised in a 15 mile sponsored night walk around London in September. Over 400 people took part, including a team from NN. The project will investigate whether or not contact lenses can improve the vision of adults with infantile nystagmus.

Moorfields Consultant Ophthalmologist Maria Theodorou said: “This is very exciting news. I’ve just started at Moorfields where I am setting up eye movement and nystagmus research. So this is a positive step forwards quite early on in getting the ball rolling on this research.”

Maria’s interest in nystagmus dates back some time. She attended NN’s first international research workshop in 2005 and spoke at the charity’s recent Open Day in Manchester which attracted over 150 people, including orthoptists, teachers and other professionals. Maria has also written articles for NN’s Focus newsletter.

Other recent research projects funded by NN include the purchase of eye tracking equipment for Cardiff University and a handheld Ocular Coherence Tomography (OCT) scanner for the University of Leicester. NN is also funding the third international nystagmus research workshop in September 2013.

Chairman Richard Wilson said: “This latest initiative with Fight For Sight shows our commitment to explore innovative ways of funding nystagmus research. The projects we have funded in the past are already helping with diagnosis and improving our understanding of nystagmus. We are delighted to see Moorfields taking an interest in this under-researched condition.”

For more information about nystagmus and the Nystagmus Network contact; John Sanders, Information and development manager, tel: 029 2045 4242 or 0845 634 2630, email: This email address is being protected from spambots. You need JavaScript enabled to view it. web: http://wwwnystagmusnet.org

ENDS


For further information contact:

Steve McKay, Press officer

Tel: 01626 206726

Email: This email address is being protected from spambots. You need JavaScript enabled to view it.  

or

John Sanders, Information and development manager

Tel: 029 2045 4242 or 0845 634 2630

Email: This email address is being protected from spambots. You need JavaScript enabled to view it.  

Notes to Editors:

  • Nystagmus affects around 24 people in 10,000.
  • Nystagmus Network was set up in 1984 to support people with nystagmus and encourage research into the condition. Nystagmus Network is a registered charity (number 803440). Sir James Galway is patron of NN. 
  • Teachers of visually impaired children report that more than half the children they work with have nystagmus. 
  • Nystagmus Network has over 600 members and was the first support group in the world for people with nystagmus. 
  • Telephone helpline: 029 2045 4242 or 0845 634 2630
  • Website: www.nystagmusnet.org
  • Twitter: @press_nystagmus and @nullpoint15 
  • Facebook: http://www.facebook.com/pages/Nystagmus-Network/216838805015328