The Nystagmus Network (NN) is a UK charity run by individuals and families affected by the eye condition nystagmus. We have three employees - Executive Manager John Sanders, Information Officer Kerry Pleasant and Development Officer Sue Ricketts. John, Kerry and Sue all work from home and part-time for NN, so our overheads are very low. They are supported by volunteers and committee members. The committee chair is Richard Wilson and our president is Vivien Jones. NN was established in 1984 and is a registered UK charity (number 803440).
John is something of a world expert on nystagmus, having attended conferences around the world and organised NN’s own international research workshops. If you would like John to speak to your organisation about nystagmus or deliver training to your team, please contact us.
John has nystagmus himself and is the main point of contact for NN's email support and phone helpline. He answers the phone (029 2045 4242 or 0845 634 2630) and keeps an eye on Facebook and Twitter with Steve, (our volunteer Press Officer) Kerry and Sue.