Nystagmus Network Publications

Nystagmus Network produces a wide range of literature and merchandise for anyone affected by or with an interest in nystagmus. Some items are available as audio cassette or CD.

Many items are free to members so why not join Nystagmus Network and take advantage of this and the many other benefits membership brings. Please see the Join page for more information.

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Books

Early-Onset Nystagmus
Produced in 1998 by Great Ormond Street Hospital for Children NHS Trust, London, in collaboration with the Nystagmus Network. By Christopher Harris PhD, Christine Timms DBO(T), Blanche Stiff RAN REV. & David Taylor FRCS FRCP.

Written by medical experts on nystagmus, this clear and detailed book addresses 92 questions of interest to parents and professionals working with nystagmus sufferers. What does a nystagmus sufferer actually see? Can he/she control his/her eye movements? What are the patterns of inheritance? Does nystagmus improve with age? What should parents know about eye tests, treatments, benefits, education and living with nystagmus?

Wobbly Eyes - a child's view of nystagmus
This leaflet is to help explain nystagmus to children who have got it. We have tried to answer some of the questions you may want to ask. You might be the only person in your family with nystagmus, so they will need to learn about it with you.

Tales of Northwick
"Tales of Northwick" shows what it's like to have nystagmus through the eyes of a little boy, Frank, and his teddy bear, Northwick. Each of the nine children's stories was written especially for the Nystagmus Network by John Sanders, who has nystagmus himself. Many of the stories have appeared in the NN newsletter, but are illustrated here for the first time by Brian George. Comments on the book include:

"As a child I would have loved to have stories of a bear with wobbly eyes like mine, as I knew of no-one else like me!"

"My daughter loves hearing about Northwick's exploits and eagerly awaits each instalment."

"Tales of Northwick" is 43 pages long, in A4 format and printed in 14 point (this size).

Factsheets Leaflets & Cards

Understanding Nystagmus
A useful booklet produced by NN, the RNIB and the Royal College of Ophthalmologists.

Nystagmus Factsheet
General information about nystagmus and the work of the Nystagmus Network.

Nystagmus and Driving in the UK
This information sheet answers some of the most frequently asked questions about nystagmus and driving. Includes personal experiences of some of our members.

Nystagmus, Treatments, Cures & Research
This information sheet answers many frequently asked questions, charts the history of nystagmus research and treatment so far, tells you what the situation is now and suggests ways you can help us make progress in the future.

Acquired Nystagmus
Information about nystagmus often acquired in later life.

Registration as Partially Sighted
Describes the process of becoming registered as blind or partially sighted.

• Small ID card informing teachers and support staff that the pupil has nystagmus.
• A4 yellow card to be given to teachers which lists important issues to be considered when teaching a pupil with nystagmus.

Computers and Nystagmus
Information about computers and Nystagmus.

Greetings Cards

Brian George has produced five greeting card designs for us based on his illustrations in the book "Tales of Northwick". The cards are available in mixed packs of five with envelopes and are approximately 13.5 cms (5.25 inches) square, printed in colour and blank inside.

Christmas Cards

The cards are available in packs of ten with envelopes and are approximately 10cm square, printed in colour and all have the message "Seasons Greetings" inside.