Who we are

The Nystagmus Network (NN) is a UK charity and support group run by individuals and families affected by nystagmus. [read more]

What we do

Our two aims are quite simple – improve the lives of people with nystagmus and promote research into this complex eye condition. [read more]

Why we do what we do

We’ll let others answer that question:

“I think the Nystagmus Network does a fantastic job and I'm very grateful to all those who give their time and energy towards it. It helped me when my daughter was diagnosed with nystagmus when she was about 3+ (she is 18 now) but I wish I'd known more about the condition from when she was born to when she was diagnosed.”

"We have just found out that our 9 month old son has nystagmus - something we had never heard of until this week. We feel shattered and scared and it has been quite a comfort to find out much more information on this website."

News

DLA advice, January 2010

People often ask us to help with applications or appeals for DLA (Disability Living Allowance). [read more]

Forum members, January 2010

We’ve started 2010 by purging our online forum of inactive users, largely because many are would-be spammers. [read more]

Focus 85 Newsletter, December 2009

“Hi, I’m Luke and I have nystagmus. I don’t really like P.E. at school because it’s mostly ball games. [read more]