Who we are

The Nystagmus Network (NN) is a UK charity and support group run by individuals and families affected by nystagmus. [read more]

What we do

Our two aims are quite simple – improve the lives of people with nystagmus and promote research into this complex eye condition. [read more]

Why we do what we do

We’ll let others answer that question:

“I think the Nystagmus Network does a fantastic job and I'm very grateful to all those who give their time and energy towards it. It helped me when my daughter was diagnosed with nystagmus when she was about 3+ (she is 18 now) but I wish I'd known more about the condition from when she was born to when she was diagnosed.”

"We have just found out that our 9 month old son has nystagmus - something we had never heard of until this week. We feel shattered and scared and it has been quite a comfort to find out much more information on this website."

About nystagmus

Nystagmus is an involuntary movement of the eyes which often seriously reduces vision. Few people with nystagmus can drive and most encounter some difficulties in every day life, education and employment.

Anyone can get nystagmus. Every year hundreds of children are born to parents with no family history of the condition. And every year hundreds of adults develop nystagmus due to accidents or illnesses such as stroke or multiple sclerosis.

News

Focus 87 (July 2010)

A new, simpler way of measuring nystagmus eye movements is the cover story in our 16 page June newsletter. In addition, ophthalmologist Maria Theodorou answers questions on laser surgery and nystagmus. [read more]

Posters for hospital notice-boards

Staff in hospital eye departments have asked us for posters about NN to put up on their notice-boards. So, we’ve produced some...
[read more]

Focus newsletter

In this issue (86), two people tell us about their experiences of acquired nystagmus – one due to an accident, the other due to a stroke.
[read more]

Cardiff University Research Open Day

Cardiff University’s Research Unit for Nystagmus (RUN) is opening its doors on Saturday, April 17, 2010, between 11 am and 3 pm.
[read more]