Nystagmus Network is run by nystagmus sufferers and their families in their spare time on a voluntary basis, supported by one part time Information and Development Manager. Decisions are taken by an executive committee elected at an annual general meeting.

The group has charitable status and is a registered UK charity, number 803440.

Like all charities we are dependent on the support of our members to meet our objectives of:

• helping those affected by nystagmus with information and support
• encouraging medical research, with a view to developing treatments and eventually a possible cure

Most of the money we receive through membership, donations and fundraising is used for the first objective and comprises:

• Focus, our quarterly newsletter
• Insight telephone helpline
• Responding to questions from professionals and the general public
• Attending regular meetings and talks throughout the UK
• Supplying printed and electronic information for nystagmus sufferers, guidelines for teachers, etc.

We are also actively fundraising for our second objective. As our funds are limited our research support is currently limited to helping with the administration associated with research projects. However with our members' help we look forward to being more supportive.